Sunday, April 19, 2015

Global Hero Application

My name is Douglas Michael Scalia and I was diagnosed with Type 1 Diabetes on May 24, 1999.  The winter prior to my diagnosis I started losing weight, I was always thirsty, and using restroom constantly.  At the time I didn’t have medical insurance so I didn’t do anything about my condition.  Eventually I finally had insurance so I went to the doctor, I recall telling the doctor the reason for my visit was because I thought I had diabetes. After performing a blood test the doctor returned and he said “I have good news, and bad news. The good news is we know what’s wrong, the bad news is you were right.”
The doctor was able to schedule me an appointment at The International Diabetes Center where I would learn to manage diabetes and gain control over my life with diabetes. Some of the things I learned were how to count carbs and dose for the food I would eat. The original treatment plan was a combination of two kinds of insulin. NPH and Regular, the NPH was a long lasting insulin otherwise known as a basal, and the Regular was a fast acting or known as a bolus. For the longest time I really didn’t have a full understanding of what I was doing, I was just going through the motions and listening to the doctors, forced to eat when I wasn’t hungry since I decided what I was going to eat at 7:00 a.m. instead of when I wanted to eat.
A time came when I was presented a new solution, Lantus and Humalog. I really enjoyed this program because I could eat when I was hungry or skip meals if I wasn’t hungry. This gave me a lot of additional freedom to live my life the way I wanted to. This new treatment option made living with diabetes a lot easier.
When I was diagnosed with diabetes I had made it down to 150 pounds, months after diagnosis I made my way back up to a healthy 175 but suddenly I found myself at 190, then 205, and before I knew it I was 255.  I read that a good way to lose weight would be to sign up for a 5k and raise money for a charity but I skipped that idea and somehow went right for the marathon and didn’t raise money for any charity.  I still have the email from the moment I registered for The Twin Cities Marathon in 2011. Registration opened at midnight but I logged in and the site let me in, at 11:52 p.m. and the response read “Congratulations! You are officially registered for the 30th Annual Medtronic Twin Cities Marathon on October 2nd 2011”
My first marathon was difficult but I finished. I remember chewing about 50 glucose tablets along the course, a lot of walking, but I finished. Probably the best part was around mile 25.5 when my brother came up and asked me “are you ready to do this because you’re going to have to lay it on the pavement to wrap things up, let’s go” as he ran with me to the chute. Sitting on the ground as my other brother showed me my unofficial time 6:00:05, had I finished or did I fail? I was told you get 6 hours to be considered a finisher. Eventually race officials assured me if I had a medal, finishers shirt, and my name was online as a finisher, then I was a finisher.
March of the following year I talked to my doctor about going on the insulin pump. Earlier in my story I mentioned words like bolus or basal but it wasn’t until I was on the pump that I knew what either of those words meant. Some other new terms I would learn while on the pump are Dual Wave Bolus, Square Bolus, and Temp Basal and Calibrate, and Active Insulin. Prior to being on the pump I really had no idea what all those terms were and how things such as active insulin could dramatically impact a run.
Running with an insulin pump and continuous glucose meter has dramatically increased my success rate of preventing a low while running and having the energy to continue. It takes a lot of practice, documentation, and trying to go out the next time to repeat what you did the previous time.
My second marathon was a huge success but a disaster at the same time. I finished the run at 5:12:16, I had to walk for almost 3-4 miles because of a low blood glucose reading. I did not carry my glucometer with me and I solely trusted my continuous glucose monitor. The meter read above 400 and I over corrected and met my fate around mile 16. I had brought plenty of glucose with me but because my correction was so great I about lost it. At this time I turned my temp basal to 5% and ate all that I could. I family was spectating and they had OJ on a table, I was lucky and that was enough to put me back to where I needed to be and I ran it out.
My third marathon is where I had my first run in with a Medtronic Global Hero. This chance meeting in line to use the restroom at the 31st Twin Cities Marathon is where I learned how to calibrate my continuous glucose meter. In the past I had calibrated it every single time I tested. The Global Hero was from Isrial had taught me to wait until I saw a flat line on my pump, this was the best time to calibrate. If it was shaped like a mountain it was a bad time to calibrate. Ever since that moment I’ve had a ton of success with calibration and improved awareness.

I don’t recall the exact moment when I decided I wanted to be a Global Hero but I do recall the moment when I decided I wanted to help change lives. If I can do this, anyone can do this. I’m not the fastest runner and to be honest I’ve always been a back of the crowd kind of finisher but I finish. I use running to tell the story of life with diabetes. My endo once told me I should make a shirt that says “I’m diabetic, what’s your excuse?”

Monday, January 5, 2015

18 Weeks until 26.2

Around this time last year I was tasked with training for Fargo Marathon. I had all the best intentions of training and running but then life got in the way. I was thankful you could defer your entry to the following year since I've never signed up for a race and intentionally missed it. I did miss Minnetonka Half Marathon but because I thought it started at 8:00 but it started at 7:00, I showed up and no one was there because they all were running. I got sick and missed much of the early training, then discovered class was on Saturdays so I decided to attend class instead of running the marathon.

A friend of mine told me I needed to run year round instead of just training for marathons and that way I would stay in shape. I tried my best to keep busy in-between but wasn't 100% on task. I've worked out probably half of the days between October and today.

Tomorrow I start training again for Fargo. Originally my goal was 4:30 but I'm going to have to reassess my goal and shoot for 5:15. I may be able to go faster but I'm really concerned with my ability to train, work, and do homework. Tuesdays nights are class nights, Saturday mornings are class. January goal will be to run Tuesday, Wednesday, & Thursday before work. This will be a challenge because I'm in to work at 7.

I plan to go to bed by 10:00 and wake up by 4:30, unsure 6.5 hours of sleep will be enough I may have to again reanalyze my plan but for now that is the goal. Saturdays in January I will either run the track at St. Kates after class or on the treadmill there. Hopefully February we'll get some nicer weather and I can run the river and back to Kates to study.

I need to continue to load my pump information and try to use MySugr more. I also need to better mentally prepare myself by thinking about my workouts and knowing what is going on before it happens. I would love to add weights but I honestly don't know what I'm doing and I'm not willing to pay for services. Even if I paid for a trainer I wouldn't ever have time to run and do weights. 

For now that's it. Have a good night! 

Friday, January 2, 2015

Diabets and working out

Check out my afternoon:

12:05 Pre Lunch 117

3:11 Post Lunch 171 - I didn't correct here because one wasn't called for

5:32 170 - Pretty dang consistent from lunch, I didn't correct because I was planning a trip to the gym and active insulin is a big no no for me while working out. 

7:42 173 - Perfect starting # and thinking my basal rate must be pretty good but who knows?

10 Minute warm up then stretch and ager that I'm 168

Get going and I'm about 10 minutes in and I ate a BeeStinger because I figured I would be wiped out by the time I was done. BeeStingers are 29g Carb. 

30 minutes in I'm 122 - I go for another 10 minutes and think I should call it quits because I went from 168 to 122 in 20ish minutes and I didn't want to be a goner.

30 minutes later I test at home and I'm 185 and another 10 minutes later I'm 205.

WTF? What did I do wrong? No temp basal, did I just not need the BeeStinger? Is diabetes just F'd up? 

Tomorrow is a new day, I guess I'll just try again.



Wednesday, December 31, 2014

Year in review

Towards the end of 2013 I got it in my head to start and MBA Program. After meeting with the program administrator at the time I discovered if I did go to St. Kate's I would be the first male graduate of the MBA Program. Looking back on the first year its less of a big deal to me that I could be the first man to get the MBA there and more excited I made it half way.

I was supposed to have Fargo Marathon be my 6th marathon but then I was sick in February and March but also decided to not run because class was on Saturdays and I didn't want to miss class in fear of falling behind. Twin Cities Marathon was my 6th marathon. I almost didn't run it because I had been lazy all summer and a few friends said it was better to train for a last ditch effort vs. not even starting. I was able to finish the marathon on 7 weeks of training. As I ran the marathon I came across another couple that said its better to be a part of the DNF club vs. DNS. That is Did Not Finish vs. Did Not Start.

Seven year anniversary with my wife on the 29th of December!

January 4th will make 15 years at my current employer with 3 years at the current location. Longest time I've worked at one place in the same job, the longest I've worked in one place was 4 years but two different positions. Cray cray.

2015 should be an exciting year, this is what's planned:

Year 2 of the MBA, graduate in December but class done in January 16'

2 Marathons, Fargo and Twin Cities(if I hear back from Global Hero's I'll make it 4 marathons on the year because I want Twin Cities to be 5th TCM and 10th overall)

Make it a great year folks!

Douglas Scalia

Tuesday, December 16, 2014

Can't get the words out

Do you sometimes find a low blood sugar brings a bunch of random thoughts and its hard to get all the words out? You find yourself babbling inside your mind about all the things you are thinking and trying to find a way to say or do things but your'e worried about it coming out wrong? You're sitting there wondering if the thoughts are real or fake, are you imagining things or are they actually happening? Does this happen to you?

I wonder how things got to where they are now. How did my blood sugar just hit 66? I tested at what would have been a normal time of night and I was 175 and I took a 2.4 correction bolus, why am I 66? What if I wasn't up at 1:00 a.m. watching a TV show and I were actually in bed sleeping? How low would my sugar have gone? I am not wearing a sensor. I didn't feel low I just tested because I was about to shut my body off for sleep. 

What if I went to bed with out testing and didn't wake up? Why am I lucky and haven't experienced hypoglycemia? Some say its not a matter of if but when and that's bullshit! Should I not have corrected and just kept my 175 and fallen asleep?

#NeedACure 

Saturday, November 29, 2014

The day my life changed forever

In May of 1998 I was let go from a job where I had benefits, 401K, and good career potential. I was always a good employee at my previous employer and didn't burn any bridges when I left so when I went back to see if I could go back they did hire me back. The job I went back to was McDonald's, and I went back as a manager. It was a salary position and I was making $23,000 a year, good money as a 19-20 year old. Eventually I got tired of the long hours and split my time between McDonald's and Perkins, I worked part time at both and got good tips at Perkins so I started to like it more there. At Perkins I remember a guy named Chris, he went to the same high school as I did but graduated a few years ahead of me. Chris was a type 1 diabetic.

While working between McDonald's and Perkins I recall loosing weight. I knew something was wrong with me I just wasn't certain what it was. I ended up looking for new employment again, I missed banking and wanted to find something in banking again. TCF took me on, I say they took me on because I was nervous I wouldn't get hired again because I got fired from my previous bank position. Luckily for me they took the chance and brought me on. I remember I was hired at $8.26 and hour, and that was 20 hours a week. 

I did good work at TCF and eventually I was promoted to more hours and a new position, this meant I got benefits! Benefits was really important to me but looking back why didn't I just go to the doctor? I started working for the bank in February and was promoted to getting benefits by mid May. May 24th is the day my life changed forever. 

I had a feeling I was a type 1 diabetic, I remember talking with Chris at Perkins about the symptoms of Type 1 Diabetes. He remained confident that I wasn't a type 1 but I had a feeling I was. Living in St. Paul with my buddy Mike Peterson I remember going down to the Super America near our home and buying one gallon of water, 12 pack of soda, jug of OJ, I was thirsty ALL THE TIME! Worse than being thirsty I had to go to the bathroom all the time. I remember early in my career at TCF I would be going to the bathroom at least every half hour if not more, it was annoying to say the least. 

Finally I have medical insurance and I think I'm a type 1 diabetic so I go to the doctor to get the results, I'm looking at those results tonight and honestly don't know what half of it says still. I can see the test were completed at 7:26 a.m., I must have had a 7:00 a.m. doctor appointment. The result of what ever tests were done was printed at 7:38 a.m. The doctor comes back into the office and says "Well Doug, I have good news and bad news" looks at me and says "The good news is you were right, the bad news is you were right." I went into the doctor telling him I thought I was a Type 1 Diabetic. 

May 24, 1999 at around 8:00 a.m. it was confirmed, I am diagnosed with Type 1 Diabetes. 


Monday, September 22, 2014

Strange Feeling

I'll see posts from friends in the diabetes community who have been diabetic all their life as in since they were little kids. I sometimes wonder if their life is worse because they've had it their whole life or is my diabetes less significant since I was 20 when I was diagnosed. My sister was diagnosed when she was 30 so does that make hers less severe?

Type one diabetes sucks, some days it occupies all your thoughts. Yesterday I went to the Twins Baseball game and I put a new CGM in. It took forever for the CGM to read as a new sensor and actually took six hours of unplugging it, charging it, removing it from the clip, blah blah blah but it finally worked! Then it was reading above 400 when it was actually 150, here comes the #calerror alarm.

So the real reason for this post was inspired by Alison Peters, a friend I met on Facebook at some point in the past. She asked a question about mixing insulin, man its been YEARS since I've done that! Below I'm going to talk about my treatment through the years, focus on the word I'm using, TREATMENT.

NPH - Twice a Day
Regular - a few hours before I ate

Here is how it would work:

Wake up and take a combination of NPH and Regular. In essence what you were doing was covering the following:

Breakfast, Snack, Lunch

Get home from work and take another combination of NPH and Regular but this time you were covering for dinner and evening snack.

What if you wanted to eat more or eat less? You could adjust your insulin intake on a sliding scale so you had a little room to work with but not quite as much room once I moved to the new insulin.

Round 2

Lantus and Humalog

How Lantus was first explained to me was you take it once a day and if you eat nothing you should be within 30 ml/d up or down from the start of the day.

Humalog was to cover anything I ate, the neat thing was I could eat when ever I wanted instead of a fixed time. I could also take the insulin right before I ate, I could eat 100 times a day and take 100 shots or I could eat nothing and take no shots. Life was so much better like this, funny i gained a lot of weight around this time but I blame metabolism and quitting smoking.

Round 3

Insulin Pump

I'd have to say insulin pump has been the best. Temp Basal, Bolus to the .1 unit of insulin, Correcting at .75 units...control you wouldn't get with regular injections. Don't get me wrong a lot of people do well with injections but personally I really prefer the pump.

All of this being said, all the above rounds are still just rounds of TREATMENT not a cure. (Sad Face)